Hi, Thanks for viewing my blog. It lets me have a rant and I may even help someone along the way. Got the idea to do a blog following using an Arthritis Forum for the first time at

I suffer from Psoriatic Arthritis which is very demanding in all aspects of my life and this is my story on how I deal with it on a day to day basis.

I have been spending lots of time recently researching arthritis and pregnancy, there isnt loads of information out there and the most helpful thing i have found to date is forums and hearing other peoples story. This just confirms to me why I am 'blogging', if someone like me wants to know they are not on their own.

Sunday, 26 February 2012

'The Surgery Is Now Closed'

What a week! I did my first week where I worked some full days; it was a struggle and I was absolutely shattered by the time I got home, but nonetheless I got through it. I also had an 'Access to work' meeting to see what adjustments can be made to help me get more comfortable at work. I've had an assessment a few years back, so didn't know if they would be able to suggest anything new which might help but they did. I need a new chair, one which actually provides support to my neck and with arms which aren't likely to fall off I touch them; but as well as that they have also suggested some voice activated software to decrease the amount of typing I have to do; due to the increasing pain and swelling I get in my hands and fingers. This is all very exciting; anything to help me get through my shift is a godsend - and I never have any problems talking!

Thursday evening 17:22, already a bit anxious about my EEG I was having the following morning, the phone rings. It is the Dr surgery informing me one of the tests for Lupus has came back positive and needs to be repeated in 3 months; but the Dr has asked to see me. Even though its only 38 minutes away from closing they refuse to book me an appointment for the following day as its 'ring on the day' appointments only. Friday morning, before 8am get in the car to be driven to the hospital for my EEG; as soon as it turns 8am (Dr's opening time) I call the Dr's for the voice mail to inform me 'The Surgery Is Now Closed'. I then try again to receive an engaged tone for 15 minutes, then manage to get through to wait in a queue for a further 10 minutes. Lets bear in mind at this point I am in the waiting room at the hospital, waiting for my 8.30am appointment for an EEG. Once I eventually get through there are no appointments left and the soonest they can book me in to see the Dr is a whole week away. So they tell me something on Thursday which I have got to wait and worry about for over a week before I can discuss it with my Dr. Grrrr! Not only this but it means more time off work. I already had Friday off.

It really is quite frustrating, not really sure how I feel about getting that result either. Whilst it might explain a lot of things; it makes me wonder what will come in the future. I don't want to think about it too much before I see the Dr as I don't really know what any of this means.

My EEG went well, the lady doing it was the same lady that carried the test out on me 11 years ago. So after lots of drawing on my head, gluing things on, hubby having a giggle and lots of flashing lights causing me discomfort; the test concluded and I have a potential wait of up to a month for any results.

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